Note: This is a Forecasted Opportunity.
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB.
Estimated Post Date:
Feb 03, 2025
Estimated Application Due Date:
Mar 07, 2025
Sponsor Institute/Organizations: Centers for Disease Control and Prevention
Address: Centers for Disease Control and Prevention Office of Science Quality 1600 Clifton Road, NE Mail Stop D-72 Atlanta, Georgia 30333
Mar 07, 2025
Varies
Affiliation: Centers for Disease Control and Prevention
Address: Centers for Disease Control and Prevention Office of Science Quality 1600 Clifton Road, NE Mail Stop D-72 Atlanta, Georgia 30333
Website URL: https://www.zintellect.com/Opportunity/Details/CDC-NCCDPHP-DHDSP-2024-0148
Disclaimer:It is mandatory that all applicants carry workplace liability insurance, e.g., https://www.protrip-world-liability.com (Erasmus students use this package and typically costs around 5 € per month - please check) in addition to health insurance when you join any of the onsite Trialect partnered fellowships.